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Current health care situation

Many of the disease statistics that we currently have are usually only available after a few years, once the registries have integrated all the data from the hospitals in a harmonised way. We are reaching a stage in medical science in which many patient data are also captured through digital technologies such as remote patient monitoring, wearables, and other AI-driven technologies.

These data are available in real time. Obviously these data contain important information for the individual patient, because it allows for a fast or even immediate response by the medical team if some alarms are set off (primary use of these data). But these digital health technologies also enable the aggregation of real time patient data offering more detailed and up-to-date insights than those currently available in administrative databases.

With due regard to legal, privacy, and security regulations, these real-time data should be made available for secondary use in areas such as public health policy, quality improvement, research, and innovation. In this way, patient population data can also keep track with the launch of new technologies and treatments and ensure that patient insights can inform and improve medical practices and policies.