The concept of Data Solidarity
Topic outline
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Welcome in this course about Data Solidarity!
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Course Introduction
- Course type: e-learning
- Time duration: 60 minutes
- Audience: citizens, health care providers, industry, regulators, researchers
- Author: collaboration between HDA and Barbara Prainsack's team
- Language: English
- Learning goals: outlining the concepts and principles of data solidarity
We wish you a happy learning!
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Data is not an abstract concept, it is deeply connected to our lives, our health and the future of healthcare. The more people demand better data practices, the more likely we are to see real meaningful change that has the potential to benefit everyone.
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Click on each name to discover the action to promote Data Solidarity.
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New developments
The newest trend is the development of Privacy enhancing technologies (PET). These technologies allow data to be analyzed and shared in ways that protect people’s privacy. They are ways to use data for good without putting people’s privacy at risk. This comes in handy, especially for sensitive health data. They are crucial to building trust and encouraging people to participate in data initiatives. For example, a research study wants to analyze health data from thousands of people. Traditionally, they have to collect data and store it in a central location, which raises privacy concerns. With these PET, the analysis can be done without ever having to move the data from where it is originally stored. You can get the insights you need without putting everyone’s data at risk. These are innovative solutions to address the challenges and unlock the full potential of data solidarity.
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